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Thanks, Ruth. I wonder if we should be on the lookout for other mutations? At this point the doctor doesn't feel the need to do any more BMBs unless his symptoms start to change. His rationale is that it's not going to make a difference in his treatment, so why go through it? As far as the Trisomy 8 is concerned, that's probably true, and the last BMB showed the clone had shrunk, but with such a small sampling it's hard to know how accurate that is. On the other hand, if he develops a Monosomy 7 or something, then we'd have to start looking at transplant. Did you have any change in symptoms when you started developing your mutations?
Dan, if you do find the article that that info came from, I'd like to print it out and share it with our doctor. You can send me a PM on this forum if you don't want to post it.
Thanks, and I didn't mean to hijack the thread!
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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