Quote:
Originally Posted by Lisa V
Ruth, I'm confused now. You didn't experience any changes in symptoms, and yet something made you decide it was time for a transplant. How would you have known that without a BMB?
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Lisa,
It's correct that I didn't experience any change in symptoms. I had BMBs at regular intervals following my ATG treatment. After about 15 months, a BMB came back showing chromosomal changes and the Dx shifted to MDS. I continued taking immunosuppressants but we started serious discussions about going to transplant. Neil and I got second and third opinions that concurred with my doctor's view that whatever the underlying disease might actually be, my bone marrow was unstable and only likely to get worse. In fact, I had two more BMBs before I actually got to transplant that showed various, different abnormalities each time. So it was the BMBs that told us it was time for transplant but those tests were done as part of the followup/aftercare from the ATG and not in response to any changes I could detect.
Hope this makes it a little clearer.
Regards,
Ruth