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Old Tue Nov 15, 2011, 02:25 PM
akita akita is offline
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Join Date: Nov 2010
Posts: 110
Dear Melissa,

so sorry for the unlucky development of your mothers transplantation. It seems as if she has her former bone marrow back.

This bone marrow seems to work, - in contrary to the transplanted one... Ok, there is an increased level of blasts now, perhaps before suppressed by Vidaza. Hopefully this medicament will help again now.

In general hematologists are said to be very cautions with prognoses. When they tell you that your mother would live 1 - 12 months, these could be much more! Your mothersĀ“s situation seems beyond any statistics, because her combination of diseases is special. Also she has had much experience with herself in the last years and can cope probably much better with infections etc. than "the average patient".

Please don`t give up the hope for your mother but don`t stress her. For me it was always the hardest job to keep my children in good mood. But your mothers situation is life-threatening. She will be aware that you are in extreme sorrows.

Hopefully your mother will not lose her nerves now, and you can support her for this.. One month in hospital for therapy? Why not? A team of doctors will check her counts and status daily and see her daily.. Staying at home is surely more difficult, in case there would be some troubles with balancing the new vidaza therapy. Does she go to the internet while in hospital? A laptop could distract her...

At home the medical help is not so present; your mother would have to wait in the ambulance together with other outpatients and can catch extra infections..

All the best!

Kind regards,

Margarete
__________________
Margarete, 54, living in Vienna, Austria,
MDS/AML M2, diagnosed 9/2007, then Chemos, aSZT 4/2008, chronic GVHD

Last edited by akita : Tue Nov 15, 2011 at 02:44 PM.
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