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Old Mon Apr 2, 2012, 02:47 PM
Karenish Karenish is offline
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Join Date: Feb 2011
Location: Stafford, United Kingdom
Posts: 100
Be very very careful stopping meds before your marrow is ready. The cyclosporine puts those naughty T cells to sleep if any are left after the ATG, to stop taking these meds you are potentially letting them wake up to wreak more havoc on your marrow before it has had time to re boot itself. Your doc should have explained this to you! I have been on cyclo for a year now, its not a walk in the park, a few tremors, cramps, high bp, overactive gum growth, but my counts are improving slowly. I will not stop taking them until doc says, and then as per protocol I think it will be what they call a slow taper.
Please be careful xxxx
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