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Old Sun Feb 2, 2014, 06:54 PM
Relentless Against SAA Relentless Against SAA is offline
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Join Date: Sep 2013
Posts: 77
My understanding is that Solaris would help protect all the PNH cells therefore possibly increasing all 3 blood lines: RBC, Platelets, and your ANC. I have never heard of three stages. I have heard doc talk about percentage of cells effected by PNH.

From what I have heard, Solaris is amazing. PNH patients feel so much better. I have not heard of any bad side effects. The only down side is the cost- I've heard its the most expensive med on the market and you have to faithfully get the IV infusion every 2 weeks. Considering PNH was fatal not too many years ago, I am thankful for those who dedicated their lives to help people with this rare disease.

If you ever need a 2nd opinion: The doc that helped developed Solaris, Dr Maciejewski, is at Cleveland Clinic Ohio.
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