My son was diagnosed with PNH 6 years ago and the local hematologist went from diagnosis straight to "You need a bone marrow transplant."
I researched and found this WONDERFUL support site:
http://www.pnhdisease.org/index.php
The best advice we got from the members of the PNH support site was to see a PNH specialist. PNH is so rare that it's likely that your run-of-the-mill hematologist has never seen a patient with PNH.
The folks on that site can help with recommending a true PNH specialist. We had to travel to see one, as there are so few of them.
The specialist told us that the first thing we needed to address was the pancytopenia with ATG treatment. He also did not recommend Soliris for my son based on his clone size (% of defective blood cells). He also said that a BMT should be a last resort.
My son was 18 at the time. He had the ATG, and with the exception of platelets, which are still a bit low (130-135), all his counts are in normal range. His clone size went up after the ATG and has since decreased. He is doing very well now, and still does not need Soliris.