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I would also like to emphasize the importance of seeing a PNH specialist. It is very important to see a doc that has had patients with this Dx. You can call the Aplastic Anemia Foundation. I believe they can give you names of PNH specialist. This is where I learned about Dr. Maciejewski. Even thou he helped develop Solaris, he does not" push" the med. He looks at counts and % of PNH. I know that he is also a firm believer in the success of ATG.
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