View Single Post
  #1  
Old Sat Nov 23, 2013, 01:11 PM
LindaM LindaM is offline
Member
 
Join Date: Nov 2013
Posts: 4
My first post: Question about MDS and dementia

Hi everyone!
I am new here. My dad has MDS. I don't know much about the specifics of his condition because he hasn't actually told me that he has this. I found out through grilling my mom and she told me. Anyway, I guess they are monitoring him closely and making sure he is in good health. His oncologist/hemotologist doesn't think he would be a good candidate for the chemo/bone marrow transplant. So they are doing the "wait and see" technique. This dr diagnosed him based on a bone marrow test he had a few years ago (from a different doctor that he never followed up with), combined with his levels throughout the years. My dad is anemic, always has been, but has gotten worse over the years.

I saw him yesterday in the morning, and he seemed extremely fatigued and pale (I've seen him like this before, but it seemed more than usual). Last night my parents took a trip to the ER because my dad had temporarily lost his memory...about everything. literally everything. After her got to the hospital the doctors that were monitoring him said there might be some early onset dementia, and said he needed to see a neurologist. This doctor didnt know much about MDS but didn't seem to think that it was related. I feel like it is all related... it has to be. My dad is young...he's in his 60s. Rides his bike every day and is in otherwise good health (eats healthy etc etc).

Has anyone heard of dementia and MDS being related?? It seemed to me (I'm by no means claiming to have any real evidence of this) that blood flow to the brain could be a factor??? I don't know. His blood test levels were not far below the normal level. but his blood pressure was really high. Thanks for reading... I wish I had more concrete numbers to give, but I'm trying to respect my dad's process in not wanting to tell me yet. I am just loving him, being there for him, and praying for him... this is super hard though.
Thanks,
Linda
Reply With Quote