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Old Tue Oct 10, 2017, 02:02 AM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Brushing several times per day with an emphasis on scraping with the brush worked pretty well, along with clotrimazole or nystatin. Keeping the tongue clean was key for me to restore taste, but it took a long time. At about 2.5 years I could tolerate spicy foods again.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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