Thread: Newish patient.
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Old Mon Sep 6, 2010, 09:45 PM
Raina Raina is offline
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Join Date: Jul 2010
Location: South Florida
Posts: 5
Newish patient.

Hi. I'm Raina. I'm 58 and was diagnosed in May. Cyclosporin wasn't helping, ( I didn't like it anyway, it made me feel worse). Doctor said next we will try Vidaza. Yesterday I had my first transfusion. I didn't really feel much different, but I actually did housework and did not get wiped out.
I drive for a retirement home for a living and I am worried about how Vidaza will affect my ability to work.
I am worried about if I need a transplant, because I don't want to lose my job. My boss is great and I am valuable there, but I don't know how corporate will see it.
My doctor tells me Vidaza is mild and that while I should consult a transplant doctor, I might not need one for years if at all. I go to Cleveland Clinic Florida.
Any comments?
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diag. 5/2010 hypoplastic mds cyclosporine didn't help, aranesp, looking at Vidaza
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