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I'm surprised they would not do a bone marrow biopsy before putting you on any of the drugs. Also, everyone reacts so differently, it is difficult to predict how you will do.
I've been on Vidaza since January, administered via injection in my stomach 5 days out of every 28. My side effects have been very minimal, soreness around the injection sites and a little tired. I had some rash and itching for a couple of months, nothing very bad, and it went away on its own. Overall, I feel better than before I started it because my blood counts are all good now. Because I have high risk MDS, my doctors are urging me to get a transplant soon--there is no way of knowing how long the Vidaza will continue to work.
Hope this info helps and best of luck to you.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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