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Old Mon Apr 30, 2012, 03:34 PM
CatherineJ CatherineJ is offline
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Join Date: Jan 2012
Location: London, United Kingdom
Posts: 29
I'm glad your platelets seem stable and you are continuing.

Why isn't there a diagnosis yet? Was the last BMB a bad sample again? Has your hematologist given you some indication what it might be?

I'm planning to run a drive this summer for Be the Match. They are really good at getting back to you when you fill out the form notifying them of your interest in running a drive on the website. They emailed me back and forwarded my info to the local chapter where I live in the US. I'm pretty excited about doing it.

A website raising money and selling your art is a great idea, I know that it costs money to run the genetic testing for bone marrow registry.

So happy you can stay positive. Thanks for updating us.

Catherine
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25F, Dx RCMD MDS 1/2012, on wait and watch for who knows how long
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