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Old Sun Jun 15, 2008, 05:05 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Pomeratrol

Hi Nixor,
I live in Europe too (Sweden). Since I got my dx May 2006 I avoid alternative treatment - I have read that different drugs can increase antibodies against red blood cells and I had antibodies from dx (perhaps from taking Echinacea for infections).

I take B12, folic acid (some people say that folic acid feeds leukemia cells but I donĀ“t believe that), B6 and mulitivitamines without iron. Then I never eat red meat since I have been transfusion dependent since dx and realized that I should get iron overload sooner or later.

Revlimid is not yet approved for MDS in Europe but for other diseases so your father could perhaps get it "off record". Then there are clinical trials for MDS in Croatia with Dacogen (decitabine) if your father would like to participate in a trial http://tinyurl.com/5c4ffy. Vidaza (azacitidine) will hopefully soon be approved in Europe because the drug company har shown good results for all types of MDS.
Kind regards
Birgitta-A
69 yo, dx MDS Interm-1 May 2006, transfusion dependent, Desferal for iron overload, Neupogen injections 2/week
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