View Single Post
  #4  
Old Sun Jun 15, 2008, 06:36 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Pomeratrol

Hi Nixor,
You know many patients with MDS - like me - are waiting for better drugs for MDS and we only accept treatment for symptoms "as they happen" as your doctor put it.

I donĀ“t think it is a good idea to try to stimulate the immune systeme with an alternative drug - leukemia is one of the complications to MDS.

You need to follow your fathers HGB, white blood cell count and platelets. Write the figures down every time they do blood work. If he gets many transfusions you should follow his ferritin (iron) value and liver tests too.
Kind regards
Birgitta-A
waiting for Eltrombopag/Promacta/Revolade for low platelets to be approved in US, so I can get it on license for my low platelets (last count 43), asymptomatic
Reply With Quote