[George]

I'm a 74 year old Canadian who was diagnosed with MDS -U in the spring of 2004. My very active life was basically unchanged until my first transfusion on Sept 15/06, the next one Nov 24 and the most recent Jan 6. Each transfusion consists of two bags. I'm able to lead a very active life style, (I was running marathons at 70) with a very brisk 5 to 8 km walk each day including some hills until the hemoglobin falls below 9. At that point my walks are curtailed as the angina gets too severe.
I'm getting conflicting information on the prognosis of the disease and am appealing to your group for some guidance.

1. at the rate of one transfusion a month how long can one receive them?
2. when that wall is reached are there alternative treatments or is it the end of the game?
3. I want to get a second medical opinion and would appreciate any suggestion as to the best place to go. My current thought is the Mayo clinic in Phoenix as we have friends there and easy direct flights from
Calgary

I would deeply appreciate any information anyone can pass on from their experience.

Best Regards
George Scott