View Single Post
  #1  
Old Fri Oct 6, 2017, 11:37 PM
Rebecca K Rebecca K is offline
Member
 
Join Date: Jun 2017
Location: Boulder, CO
Posts: 9
still needing RB transfusions 6 months post transplant

Hello everyone,

I had a stem cell transplant/sister donor/reduced conditioning 6 months ago. I also had breast cancer chemo and radiation 20 years ago..

I am feeling very well overall with not great but steady WBCs 4ish, platelets (80) and ANCs (2.5)... but my marrow is hypocellular (5-15 per cent), and my RBCs are not enough to be transfusion independent. Every 12-14 days, I get a unit.

Drs. think I have damaged stromal cells and low cellularity causing the RBC and hemoglobin issue.. everything else looks normal on biopsy (100 % chimerism, normal kyrotype etc.). (Also my sister and I were different blood types).

Docs want to give it time.. anyone else have these issues with cellularity and stromal cells? Did you heal over time or get a med intervention?

Appreciate your inout-- and how informed people are generally on this forum.

Rebecca
Reply With Quote