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My counts are good now but I still get leg pains, and my heart pounds in my ears when I go to bed at night. Before, i mainly noticed the extreme shortness of breath and fatigue. I even went to a pulmonary specialist who told me my only problem is that I'm overweight and out of shape. He didn't bother doing any bloodwork. Two months later, i was diagnosed with AML/MDS.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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