View Single Post
  #12  
Old Sun Oct 30, 2022, 01:10 AM
PKumar PKumar is offline
Member
 
Join Date: Sep 2022
Location: Los Angeles, CA
Posts: 4
My wife AA treatment

Thanks Matthew for your suggestions.
We had the blood test done on 10-28-22. we were pleased with the progress
The white cell count increased to 4.1 and neutrophil to 2.5 which are both in the normal range. Her hemo was 9.9 which is not normal but in the safe zone.
Her platelets improved to 15K which were higher than 13K in the last test.
She is on 125 Mg of promacta, 3mg of Tacro and 10mg of prednisone
Prednisone was added 3 weeks back.
We dont know exactly what is helping her the most increased dose of Promacta and Tacro or addition of Prednisone or HTAG treatment.
The issue of nausea and lack of appetite still persists and we are using Zofran and Ativan to control it. We try to supplement her food with different protein shakes and vegetable juices so she can get her daily nutrition of minimum 40 gms of protein.

We have used following diet as a supplement to improve the white cell count
smoothie made from equal amount of Kiwi and frozen dragon fruit and protein powder.
For Platelets and red cells
Green leafy juice, Pomegranate seed extract, papaya, beets, oranges etc
We want to thank all well wishers and hope her platelets improve above 20K so they can stop transfusion. It has been a tough journey for last 8 months from the time she got her HATG treatment in Feb 2022 and hope that our experience helps others.
Reply With Quote