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Old Sat Mar 28, 2009, 01:09 PM
Vera W Vera W is offline
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Join Date: Jan 2009
Location: Colfax Ca
Posts: 152
Trial

I was offered this trial but decided it was too far to drive (106 miles) since I could get the azacitidine close to home. I was also told that it could hinder my transplant process for quite some time(insurance issues) so I opted out. But even if your husband just gets the azacitidine I have to say that the results have been remarkable for me. My hemoglobin went from 10.2 and has been holding strong at 13.8 and I feel so much better. Initially his counts will drop but it is wonderful as they start coming up. Tell him to drink lots of water it is very dehydrating.Best wishes!
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Vera, 56 yo female Dx RAEB II 10-08, 11-12% blasts. Normal chromosomes. Started Vidaza 10-08. . Improved Dx 3-09 MDS RA 2% blasts 8 cycles Vidaza! SCT transplant 7-1-09 at UCSF. Normal bone marrow and MDS free as of 10-09
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