Sun Sep 13, 2009, 10:37 AM
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Member
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Join Date: Nov 2007
Location: Ontario, Canada
Posts: 203
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Hi Laura,
Just saw your question this morning. I looked back at Evan's journal and noted that we started the MMF taper on Day+126 and finished MMF altogether on Day+173. Evan did develop some patchy pink dry skin areas on his back and neck during the wean but it wasn't thought to be GVH but rather viral driven or eczema. It waxed and waned but never bothered Evan. It disappeared completely within a few months, I think..
Take care,
Nicole
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.
www.caringbridge.org/visit/evanmacneil
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