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Old Thu Sep 17, 2009, 12:52 PM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Day 71

The big consultant just told me a few minutes ago that they're going to start tapering me off the cyclosporin, hooray!!! It's about the only good news I have right now, being readmitted and looking at a possible 6-wks inside for liver infection. But I'll post that in my thread.

Anyway yeah he said they start to taper patients at around 2 mos who haven't shown any signs of gvh. I'm currently on 225mg per day and i'm looking forward to getting off cyclo entirely as it seems to be causing most of my other problems and half my meds are purely to counteract the cyclo side effects!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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