[LynneR]

Hi my name is Lynne. I have been dealing with red cell aplasia for close to a decade now and just joined this forum hoping to see something new that has worked for someone else. My retic count dropped to zero for the first time about 9 years ago. Tried Rituxan and then cellcept and eventually went into remission for a few years. This time after the disease returned, I had a some lung issues when taking cellcept, so I switched to an older version of the drug, Imuran. So far, over 6 months and no improvement. The only change is now I have iron overload and am on Exjade. It would be really nice to talk to others with this disease. It is very lonely knowing no other person with this illness.