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Old Thu Feb 15, 2007, 05:54 PM
Rose Shifflett Rose Shifflett is offline
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Join Date: Jan 2007
Posts: 2
Rose Shifflett's MDS story

I am 57 years old and was diagnosed in 09-15-06 with MDS , refractoryanemia with excessive blasts (33%), no symptoms except lack of energy, fatigue and bruises when I went to the Dr. for an infection. After being howpitalizes in Sep and Oct I was put on Vidaza shots which brought my count blasts to 11% in my bone marrow, my WBC ar 3, my RBC 4 and my platelets about 200, I have been transfusion independent since No 06 Since my body seems to respond well to Vidaza I am now on a 21 day cycle. The transplant team at Medical College of Virginia in Richmond has found 3 unrelated donors with an10/10 allele match. My oncologist is now talking about the risks of GVHD with an unrelated donor after I thought it was our goal, I will consult MCV again, maybe another opinion or is the stage too advanced, does anybody know?
I am learning to live with the disease one day at a time, I was so grateful to find this forum, it spells hope and support and strength for me Sincerely, Rose
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