Angie and Triumph 69,
Thanks for your replies.It is helpful to learn that other autoimmune diseases come up along with SAA.
I really wish the doctors could figure things out.So far I am stable with the SAA[still partial remission -platelets run low] but have new diagnosis of gastroparesis -unknown cause and these awful temporal headaches.All the blood work so far is normal for ESR, c reactive protein , all these rheumatology tests, immunoglobulins, liver functions, ultrasound of right upper abdomen normal although it hurts even with the seatbelt hitting there or lying on the right side while sleeping.
It 's frustrating to not know what it is.My SAA was like that for awhile then --BOOM I sunk and we discovered it.
I LOVE this website!!!!You can learn so much from other people who have been down this road too.
Thanks again-Ellen
