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Hi Ellen,
I am still figuring out how to best utilize this web site myself, but I do know that if you go into "my settings" and then "edit signature", you can write your profile and have it appear at all times. I really value reading each person's profile as they post, so I have an idea of their illness, age, counts, etc. I also am grateful for those who continually update their information to remain current.
Donna J.
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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