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Old Thu Dec 31, 2015, 04:05 PM
traceyn11 traceyn11 is offline
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Join Date: Apr 2015
Location: Irvine, CA
Posts: 142
Hi Paul,
Yes I have a hematologist locally - 10 min away at the Kaiser hospital. He is very familiar with MDS and last time I saw him he had mentioned that the platelets were low, but that he was okay with it. I am 98% sure he said the threshold for transfusion was 10% then. Unfortunately he is out of town until 1/4 and I don't really know any of the other drs. in that group.

The transplant specialist is an hour away at City of Hope, so yes the local hematologist is calling the shots until the transplant.

No rugby for me! Actually I am scared about getting sick again and still feeling quite a bit of fatigue, so I am avoiding going anywhere other than drs. appts and walks outside. Luckily my kids are on winter break so there is someone home most of the time.

Yes it is very interesting hearing about other experiences and makes me feel more confident in my decision to hold out on the platelets.
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Tracey, mom & wife,age 58, dx MDS RAEB-2 4/15, normal cytogenetics, Update: SCT cancelled. Blasts at 67%. New dx AML.
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