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Okay, R & G, breathe!!! I know it is easy to say and everyone has told me that a million times.
But for practical advice:
1. Make sure that you still use wipes and are extremely cautious about cleanliness
2. Eat and drink and drink and eat--one of THE hardest things for patients
3. Keep the faith. God is on duty 24/7 and is more than willing to listen
4. See if you can get some sunshine--either through a window or outside if it is allowed. It is incredibly healing. Of course you need sunscreen
5. Check the lists for post transplant and advice on these forums. It is the best!
6. Do know that steroids are incredibly helpful, but they can make you a little crazy. I only had to take them once and I was bouncing off of the walls
7. Look up all of the successful and ongoing transplant stories. That will give you courage and ease your mind a bit
I have only listed a few things. There were so many kind and caring people that did this for me when my husband was pre-transplant. We are now at day +38.
Best of luck to you. I think that you are doing great!
Deb
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