Steve, Wow. I feel for people who have gut gvhd
. I began doing stretches and walking some to get some of my energy back and to ease my achiness. My husband got my refill for vancyte and it was $6000.00 + for 100 pills. Thankfully our prescription benefit is good. I had my blood tested this past Thursday but they do not have the tighter (sp?) back to see where I am with the cmv. It seems it is always something! But... it could be worse.
Thank you for your response. I have to get better and more energy so my husband and I can go on our motorcycle trip in May-June! Lori