Hi,
I was told today by a nurse at the daycare centre that the age of the blood doesn't matter. Then my bloods came back and my Hb was exactly the same as it was 2 days ago before my 2 unit transfusion of blood due to expire in 3 days. So I lost 2 units of blood in 2 days??
So I had to have another 2 units of blood today and guess what? One of them had an expiry date due tomorrow, but luckily the other one expires on the 21st October.
BTW I also have heaps of antibodies and it takes a long time to cross match my blood. I always have O pos, K neg, CMV neg, leukocyte depleted and now irradiated blood. I have a list of 7 or 8 other antibodies (don't know what they are) that are also listed on the blood bag.
I'm always given intravenous hydrocortisone before my transfusions and also have an antihistamine ordered but I refuse to have it because it makes me too tired and therefore dangerous to drive.
Regards
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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