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Old Tue Dec 14, 2010, 04:28 PM
knstone knstone is offline
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Join Date: Aug 2006
Location: Cincinnati, OH
Posts: 118
Another opinion??

Hi Tom,
My MDS started with low platelets and WBC, nearly normal Hgb. I did have high blasts from the start.

You are very near NYC and Dr Silverman is there, he is a noted MDS specialist. Have you considered getting a 2nd opinion? Sometimes it's good to get a BMB at a clinic noted for MDS, the pathologists see lots of MDS marrows and have a lot of experience reading them.
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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