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DO NOT USE THE VA!!!!!! I have use the Orlando VA with Dr. Vishnubhotla and she claimed to have requested my records from the National Institutes of Health in 2011 come 2014 I went to the hospital due to what appeared blood in the urine and miserable organ pain I mean liver hurting, spleen, everything. I get out of Florida hospital and they figured out at 8 year misery in 2 days that I have had PNH all along and finally was on the tail end of dying in the hospital with Pneumonia.
Needless to say 1-2 days before me admitting myself to the hospital Dr. Vishnu dismissed me with the mere flu and prescribed antibiotics!!!! This is the healthcare we signed our lives away for.
I found out she never requested the medical records from the NIH because if she would've she would've seen that the NIH diagnosed PNH through flow cytometry and bone marrow biopsy. They requested that my doctor also do proper follow up to confirm. Did she? NO. I went 8 years suffering and needless doses of prednisone when in 2011 I could have been put on soliris to combat the PNH. Please my brother, only use the VA for medications.
I will also email you something also.
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Diagnosed PNH 2014/ Autoimmune AA 2006 treated with prednisone/ Hemoglobin 10.1; ANC .55; Platelets 150K
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