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Old Mon Nov 17, 2014, 03:49 PM
Rentzi Rentzi is offline
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Join Date: Sep 2014
Location: Edgeley, North Dakota
Posts: 22
Post Mayo Clinic Visit

We are officially three months out after ATG. His last labs were WBC 2.6, Hemaglobin- 8.7, Platelets 30, and ANC 1404. I am pleased with these counts and I think it is a good sign. He hasn't had a transfusion of any sort for 20 days. The issue at hand now is the thymoma. We are scheduled to return to Mayo Clinic in January for a PET scan to see if the growth is "hot". But my understanding is that even if it is not cancerous it can still send faulty information to the immune system and attack the marrow. Our local hematologist would like to get it out now. Mayo wants to wait until platelets are consistently over 50 before considering surgery. Should I be reaching out to other physicians for any insight. The reality is that the doctors we have been seeing do not know. I have scoured the internet and have found several articles where thymoma is indicated with AA. Would love to hear your advice. Thank you.
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Melissa- wife to Rory 45, dx VSAA , 8-11-2014. Thymoma, ATG and cyclosporine
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