Hello Friends!
Just wanted to let you all know that it looks like we are seeing results from the treatment. My last platelet transfusion was 3 weeks ago today, and my platelets have slowly been going up on their own. Post transfusion I was at 35, then 19 about a week later. Then came the best news - my platelets had climbed to 24 by the end of week 2 and were 29 today! This is all just a little over 2 months post treatment.
A few weeks ago we were talking about putting a PICC line back in because of my frequent transfusions and blood tests (transfusions once or twice weekly with blood work 3-4 x's/week!). Now I've cut down on my clinic visits to twice a week and the dr's are very pleased and hopeful with the current trend
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I hope this offers a bit of encouragement to anyone that needs it - keep fighting this, you CAN beat it!
-J