|
Kashnav,
One seemingly logical step would be to get tested for v617f jak2 protein. presence of this protein, which can be checked from a blood draw, would increase the likelihood of response to one of the new clinical trial drugs know as JAK inhibitors. There are several good reports on about 3 different JAK1/2 inhibitors.
another question though, has your doctor commented on an increased spleen size? splenamegaly along with marrow fibrosis is usually necessary for a diagnoses of Primary Myelofibrosis.
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
|