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Old Mon Sep 26, 2011, 04:58 AM
pvinod pvinod is offline
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Join Date: Mar 2011
Location: India Gujarat Ahmedabad
Posts: 39
Hi Hopeful,

Thanks for video link.

Till what time she can responding to platelet and blood transfusions? Means how much year anyone can live on transfusion? is there any particular criteria? Is there any fix technically period?

Our doctor says they are used NPlate in only ITP. so we are not force much.

Duration between RBC transfusion is tricky, before approximately 21 days we should have to transfuse blood. but now almost 30 days her HB back at 6. so we are transfuse blood every 30 days. so transfusion days increase, but not much and not satisfied.

Yes, we should not have to wait more, I am mentally ready for BMT, but my other family member , specially my wife and my father are still not ready , afraid.

They said , she looks very fine after transfusion , no one can say she is ill after transfusion. At least right now she can live with transfusion. They said we should have to go for BMT at very last , means when after there is no hope, after 4 - 5 years, so if anything non accepting happen in BMT, we can feel we tried all, but at end we lost. Right now if something happen in BMT, we cannot excuse our self.

but that is true, if we will not go for BMT then at least we must have to take second round of ATG. We do not have to sit idle without any treatment.

Thanks Again.
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Kavya; my daughter age 4.5; diagnosed AA 2010; treated with ATG in December 2010; currently on cyclosporine; 6 month over for ATg but still transfusion dependent;
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