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Desferral side effects
Hi All,
I have been on sub Q Desferral 5 days a week for about 5 months and up until recently I have not really had any major problems.
In the last couple of weeks I have been suffering from very severe pain when I have been on the infusion for 2 or more days in a row. The pain is in the sides of my back, my lower back, across my abdomen and in the tops of my legs. It is a really unusual pain, it feels like I am very badly bruised.
Has anyone else experienced this? I am giving the infusions a rest for a few days because to be honest I am frightented of it happening again. No amount of painkillers helped. I could really have done with some ibuprofen but cant because my platelets are low.
Thanks in advance for your advice.
Polly
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Polly
32y, mum of 2. VSAA dx Dec 2010, no horse ATG available, treated with Cyclosporine alone, partial response, transfusion free since Dec 2011!! on SQ Desferal for iron overload. Keeping everything crossed!
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