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Paul, we are with you through this. I can remember these first days very well. I felt fine the first two days and then it was Day-2 that I first felt the effects from the Fludarabine. I felt tired, but no feeling of any kind of pain. My suggestion at this time would be to keep your mouth/tongue as clean as possible and eat/drink as much as comfortable. Be very aware of how your digestive system is reacting to the Fludarabine and the other pills that you are/will be getting. Try to keep a good balance between constipation and diarrhea so either extreme is handled. Try to get as much sleep as possible. The next 10-15 days will find you tired so keep your mental stamina as good as possible.
It will be very important to find out whatever food(s)/fluids work best for you. It will probably take some experimentation so don't worry about not eating what doesn't work. For me it came down to a lot of tomato soup which served a purpose of food and fluids.
I wish you the very best! Let us know if there are any questions.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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