Quote:
Originally Posted by JodyW
HI,
My son Trevor was diagnosed with VSAA in march had ATG and is currenly on cyclosporin. He recently started to have his left arm and leg turn red and get very hot. He described it like frost bite when your hands are so cold it burns if you run it under water. The Dr told him it was Flashes. I looked up flashes and could only find hot flashes which doesnt seem to apply.
Unfortunatly my son is in prison and he has limited access to the hemotologist , no specialist in AA and a prison Dr who knows nothing about AA. Any idea on what that response may be. Im concerned the prison is giving him the cheepest blood they can find and may be having some effect.
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Absolutely concur with the others. tell your son that he may get "hot spots" I tend to get them round my knees and arms, they go hot and red out of the blue and then they go back to normal. Also if I pick up something really cold or walk barefoot, I get that hot feeling....like chillblains (uk term). If I was my hands in really hot water they sort of ache for a while...I have also got soft downy hair on my shoulders, arms and side of face (I am female). Also get the tremors in the hands and sometimes my legs are "restless" - all classic cyclosporin side effects!! Hope that puts his mind at rest xx