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Old Thu Nov 9, 2017, 07:36 PM
hope50 hope50 is offline
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Join Date: Nov 2017
Posts: 6
SVAA-HORSE ATG + CYCLOSPORINE need some help

Hello everyone,
My mom was diagnosed with SVAA 2 months ago, after 3 bone marrow biopsy. At the end of September she had H-ATG + CYCLOSPORINE treatment and everyday shot (I don't remember the name) to increase her WBC. Six weeks after the treatment she hasn't had any improvement, she is transfusion dependent for platelets and blood. WBC .4 -.8, Platelets under 10.
She's been in the hospital for the past 8 weeks. After her ATG treatment she got blood infection from the IV, she's on antibiotics for the past 6 weeks. The bacteria created a clot in the right valve of the heart and it"s still there.
She got pneumonia and sepsis which put her in intensive care for a day due to septic shock. It was a very difficult period for her and us, especially when she showed some signs of delirium. Today she doesn't need the oxygen tank, she's doing fine on her own and she doesn't have any delirium signs.
A week ago she got infection (fluid build up) in the anus area for which she's taking antibiotics.
She has no appetite and if she eats anything she vomits, and she sleeps all day.
Yesterday one of the doctors told us that she wants to put her on Campath (Alemtuzumab), she also said that she wants to do another bone marrow biopsy. This was a change of plan because at the beginning of treatment we were told that after ATG treatment she was going to be put on Promacta. We can't afford to buy the medicine.
Does anyone know how or where we can get Promacta at an affordable rate?
Does anyone have experience with Campath?


All comments and experiences will be appreciated.

Thank you.

Last edited by hope50 : Thu Nov 9, 2017 at 08:36 PM. Reason: added more sentences
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