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Old Tue Jan 3, 2012, 01:48 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Exjade and WBCs

Hi Deb,
I was never able to take more than 500 mg Exjade/day due to decreasing WBCs - according to my weight I should have been taking 1250 mg/day.

You should ask why the Exjade dose was reduced - if it is because of increasing creatinine you could perhaps try to drink much instead of reducing the Exjade. I have heard diet experts at different videos say that patients with bone marrow disoders should try to drink about 2 l fluid extra/day. I do that and hope that my bone marrow will function better.
Kind regards
Birgitta-A
72 yo, dx MDS 2006 tx dependent from dx. Good results with Thalidomide + Prednisone since 2010. No txs since Sept 2010. Exjade stopped July 2011. Ferritin value now 866
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