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We're in the same boat...
Our 10 year old son Evan did not respond to ATG/cyclo and it's been 6 months now. We are headed to transplant in June.
Studies indicate that an AA child should go to transplant if, after 6 months, there has been no response to ATG/cyclo and if there is a suitable donor available. Doing a second round of ATG (after the first round failed) only prolongs the length of time from diagnosis and thus increases the likelihood of a serious infection as well as increasing the number of transfusions received, which increases the risk of transplant.
It sounds like your circumstances are going to be very challenging but my advice is to find a way to make it happen. If the donor is a great match and is available, find a way and just do it. Just my advice though.
Best wishes,
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.
www.caringbridge.org/visit/evanmacneil
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