Absolutely agree!! Loads of information, amazing, strong people (both patients and caregivers that we met), and messages of hope and support all weekend.
My only wish was that there were more opportunities (more down time) to speak with other attendees. The days were so packed with activities (all great!) but not so much time to just sit and chat with others, and share stories.
Altogether, a rewarding weekend - very glad that we went. Will certainly try to go next year!
Gloria, early 50s, dx SAA Summer 2007, Pred July 07, Rituxan Aug 07, dx PNH Feb 2008, ATG Apr 08, began Soliris 5/31/11