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Old Tue Oct 8, 2013, 08:48 PM
mausmish mausmish is offline
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Join Date: Mar 2010
Location: Maryland
Posts: 453
Sherry,

Every time I try to go off acyclovir, I get a herpes flareup - or perhaps it could be gvhd. I've resigned myself to staying on it indefinitely. It seems to produce no adverse side effects and besides prevacid for reflux, it's the only thing I take. I've been told by the doctors that gvhd might eventually burn itself out or might be around forever. At least it's also graft vs. leukemia at the same time. It could be the new ABNORMAL. I say experiment with the acyclovir and see ehat happens. Also, the dexamethasone might actually be irritating. Isn't that a steroid? If so, I think I tried it briefly and then quit because it made my mouth sore in general.

Karen
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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