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Meri,
I have had gvhd of the gut basically since transplant. It gets better and worse, frequently within the same week.
I have tried rituxan, budesonide, prednisone, tacrolimus, and photopheresis. It seemed to take the best turn after the rituxan and has been reasonably well controlled with photopheresis and tac only pumping up the budesonide occasionally.
I hope that you get to a good place with the gvhd soon.
dan
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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