Thread: MDS Low Risk
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Old Tue Oct 10, 2017, 05:49 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
I stayed in watch and wait for about 3.5 years and then changed over to RAEB1 at which time i moved to transplant. I did not require treatment nor transfusions during that period, just regular monitoring. I had normal-ish RBC and WBC, but platelets that stayed reliably between 20k and 30k - never higher, never lower.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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