Thread: aa or mds?
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Old Sun Jul 19, 2009, 12:17 PM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Hi Carolyn.

I'm afraid I don't know enough about either disease beyond my own experiences of having both so I can't really help out with your questions, but I'm excited to finally see another Londoner on here! I'm currently at Kings down in Denmark Hill midway through a bone marrow transplant that's been an absolute breeze thus far... which hospital are you being treated at? I'd been seeing Dr Radia at St Thomas's and also Prof Mufti (MDS specialist) and Prof Marsh (AA specialist) here at Kings and have been ridiculously happy with all three.

melissa
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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