Quote:
Originally Posted by Sfdcoach
Hi Chirley as per our last biopsy on 1/15/13 no chromo abnormalities or mds. I cannot find another toddler with both diagnosis at this time. We are currently trying to configure our next move before we head to a bmt. We feel all of his other diagnosis need to be throughly investigated. His ATG treatment was now 9 months ago. Being that we have had issues with medical facilities being able to accommodate with a spectrum understanding we are looking for a proper facility.
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Have you contacted the NIH? They like rare cases.