Patti,
Isn't Greg the greatest!!! He has taught all of us so much about MDS. And I totally concur with Birgitta (she is brilliant also) and slip up 2 was so right - YOU HAVE TO BECOME DEAN'S ADVOCATE! Sorry, didn't mean to yell!
If I have learned anything in these two years and three months, it is that I have to scrutinize EVERYTHING, because doctors, nurses, and hospitals do make mistakes.
And slip up 2 is so right, you need to get a copy of all Dean's labs and his bone marrow biopsy report. I keep all of Al's and take them with me each visit. That way I can compare them when they hand me the new one.
There should be no problem with the doctor's office or hospital giving you copies, you just sometimes have to ask - or maybe in Dean's case - demand.
I do hope that Dean will decide to go to Moffitt or at least somewhere else. If nothing else it might ease your mind to have another opinion.
Good luck and God bless. Try to enjoy the rest of the weekend.
Hugs,