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Old Mon Jan 30, 2017, 04:52 PM
catherinemus catherinemus is offline
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Join Date: Jan 2017
Location: Brooklin, Ontario Canada
Posts: 1
Smile Aplastic Anemia - looking for a transplant now

Thank you for the warm welcome, it helps to know you aren't alone, in fact others are facing more challenges than myself which makes me feel humble.
I was diagnosed with ITP in 2014 having just finished with radiation for a lumpectomy. (to date I am clear in my mammograms yay). Diagnosed July 2016 with Aplastic Anemia. Underwent IVIG, Rituxan, ATG Horse, Cyclosporine and Eltrombopag. Nothing worked, platelets have been less than 10 since June 2016, Neutrophils 0.4. Right now living on Cyclosporine and weekly transfusions. 3rd Bone Marrow Biopsy completed - awaiting results. Second one indicated empty bone marrow with no megakaryocytes which create platelets.

Dr. Richard Wells of Sunnybrook is sending me to the Transplant Team at Princess Margaret in Toronto - waiting for the call. Would appreciate hearing from anyone who has gone through a BMT using an external donor. I don't have enough stem cells for them to farm.

Thanks for listening.
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