janq,
Have you ever had a bone marrow biopsy? Diagnosis of MDS is usually made after a bone marrow biopsy and aspiration. If you are in Lecanto Florida then you aren't very far from the
Moffitt Cancer Center, which is a major MDS treatment center. If you go there for a consultation and possible testing, the MDS specialists there should be able to give you answers to your questions.
Since you'll be traveling internationally, you might want to ask your doctor about any precautions to take, such as having recommendations for who to contact if you have any medical issues while in Europe, or bringing along a summary of your medical condition, history, or treatments, just in case.